Rare Disease Week on Capitol Hill: Spotlight on the Vasculitis Foundation

Karen Hirsch of the Vasculitis Foundation shares her journey to help her son. (ABC7)

Today is Rare Disease Day, a worldwide initiative to raise awareness about rare diseases and their impact on patients' lives. This week, patients and advocates are gathering on Capitol Hill to lobby for more funding to fight these diseases, and Karen Hirsch, president of the Vasculitis Foundation, shared her personal fight for a cure for her son. Get involved at and

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